Children with Fragile X Syndrome: A Parents' Guide

Good information on why Fragile X can skip generations it is an insidious genetic disorder that affects males. Women carry the gene and pass it on to their children if we would have had girls the mutated gene would be passed on and our girls would not have been affected but when they had children and they where boys my grandsons would be affected this is why this disorder is so insidious it skips generations. It is the most common form of male metal retardation. It is why there are more men in prison than women

Jayne Dixon Weber has been there.....she KNOWS what it's like to raise a child with fragile x syndrome. I met her on a trip to Denver with my son, also affected by FXS, and was impressed by her. All of that comes through in the firm grasp of the facts in her book. It's hard to describe this life to someone who hasn't been there, and Jayne does a remarkable job. I find her work to be professional and compassionate. I think this book would be a wonderful addition to a parent's library as well as that of educator, social worker, doctor, etc. It's a VALUABLE personable easy to read book, from a true veteran.

It talked quite a bit more than I would of liked about what Fragile X is and how they find it via genetic testing. Well I already have that information and I was hoping it would be more about parenting a child with fragile X and that it would talk more about kids who were older but it mostly focuses on younger kids and how you should accept them (yeah ok, like I wouldn't know that without reading a book).

This book is one of the most informative reference books I have read. you could not find a better course of information on this topic and not only myself but the professionals who are dealing with my grandson have found this book very informative.