The Iron Disorders Institute Guide to Hemochromatosis: Symptoms, Relief, and Support for Hemochromatosis Sufferers

I've read pretty much everything on the internet, and all of the major books available on Amazon on this subject. THIS is the best book, and the only one you really need to read. It's incredibly comprehensive, covering all of the aspects of the disorder, symptoms including in more detail than you find on the internet, and importantly, case study after case study so you can see similarities with your own or your loved one's disease pattern. My family has this, including myself. This book gave me the information I needed to go to battle and make sure that I not only fixed it for myself, but can make sure my kids and siblings fix it. What I found most interesting is the info on how it interacts with other diseases. So for each person, they can see how perhaps some of their other health issues might be being influenced, caused, or in some cases helped by their iron overload. Fascinating. The one takeaway is that everyone should have their Ferritin and Iron Saturation % tested at least once every few years, because it's a cheap test and it can avoid death if you catch an iron disorder early. Those with high Ferritin and a saturation over 45% should have genetic testing, which isn't cheap but can nail the diagnosis. And then they should begin giving blood, maybe as frequently as twice a week in the most critical cases. Obviously, under the supervision and direction of an MD. This book will give you the "best practices" for treatment to share and discuss with your physician (you an also find it on the Iron Disorders website for free too) so that both of you can get your care plan right. Anyway, if you have iron issues or have a loved one with iron issues, this is a book you need to buy and read cover to cover. If caught early, it's an easy disease to treat, which is why you don't want to delay or mess around.

There is good information on the internet about this disorder but much of it is rather vague or seems to somewhat contradict itself among the different sources. This book is a one stop shop written by the authorities on the subject. It is all of the information you always wanted to know but were to afraid to ask. It is presented well and it is very thorough. Sure some of the information is rather technical but it is a great reference that I find myself going back to over and over. So if you don't get it all on the first read, give it a week and read it again. If you take the time to read this book cover to cover you will probably know much more about the disorder than the majority if the Doctors out there and that is a real blessing and a same at the same time. This disorder is a silent killer. After reading this book, I now have regular "informed" discussions with my Doctor about my situation and treatment plan. It also opened my eyes that not all people have the same classic symptoms that are described elsewhere, many of the minor symptoms presented in the book fit my situation exactly and my Doctor never made the correlation. I am also convinced now that my Grandmother died of this disorder and we never had a clue. The chapter with the case histories from people who have this disorder and their journey trying to work with doctors to get a handle on their health issues was worth the money alone.

Hereditary Hemochromatosis is to humans as iron filings are to your DVD player. In both cases, electrical signals are attenuated or shunted to ground. Tests for Iron overload need to be a priority for any northern european male who is hypothyroid. Untreated, Hemochromatosis will eventually kill as a consequence to congestive heart failure. I tested genetically positive for Hereditary Hemochromatosis, DX with low heart rate, blood pressure, course liver, enlarged spleen, arrhythmia, Central Sleep Apnea (mixed) in which my brain fails to consistently send my diaphragm the needed signal to contract so I will breathe. HH also causes gout due to impaired metabolism of uric acid until it is eliminated. My treatment began in June. Untreated, odds of me living another two years are poor. With the organ damage already incurred, I might live another five years. I haven't given up yet and am augmenting my weekly phlebotomy with adaptogens, numerous antioxidants, while avoiding many of the side-effect laden pharmaceuticals. As for thyroid, I was doing well on T3 only with a weekly dose of cytomel for bone health. I have transitioned over the summer to 100 mcg of synthroid. In November, my throid panel will be tested for adequate conversion to Free T3. In April of 2012, my reverse T3 was 863. A month later without further meds, it was still 179 and dominant per the RT3 syndrome calculation. I felt lousy then and feel lousy today. I have another month to go.

I was a former pharmaceutical and medical equipment sales rep. for many years and had never heard of Hemochromatosis. My brother was diagnosed recently and this book helped me understand the disorder, and gave great insight into what it all means. I only wish there were a more updated guide ...but I found this book to be very comprehensive and helpful for our family.

Liked: This is a comprehensive description of iron overload disorder and hereditary hemochromatosis. Causes, symptoms and treatments are described in full detail. Disliked: The numerous case studies feel like overkill at times and the references to the Iron Disorders Institute scattered throughout can be toned down. Overall: well worth reading!

A very good rendition of this condition and treatments for it. I highly recommend it for reading and most especially for anyone suffering this condition!

very useful and informative - don't scare yourself with all the information. It covers all levels of condition but is well written

Great read

Very informative.